Got interrupted last night so I’m finishing the blog today. To finish chronicling the past few weeks, we had hosted some golfers for a local mini tournament. In the middle of that my sister and I hosted a table for the Pink Ribbon Lunch. Then the son of a dear friend got married. Then it was our son’s birthday (he was home so that was nice albeit busy). Then our son’s girlfriend graduated from college so we went to her graduation. And today’s our anniversary (31 years). Whew! May is always busy at our house but this year felt even more so. And we have a wedding to attend this weekend too.

Since I started this blog last night, one main thing has changed: As I got ready to shower this morning I noticed that the left breast implant incision was once again red and infected looking (yes, the same one I just told you had totally healed from the last infection). Wrong. I saw Dr. Willard this morning and he had to open the incision and clean out the infection. We think it’s probably my weird body having trouble with a stitch. This has happened to my dad a number of times and I typically am slow dissolving stitches. To be safe, Dr. Willard cultured the goo, cleaned out the infection and I’m seeing an infectious disease specialist tomorrow. Hopefully this will be a minor bump in the road.

What I am really ready to do is start back on medication for rheumatoid arthritis. I’ve been off the medicine Enbrel for over a year (had to stop before chemotherapy because this med compromises your autoimmune system and you well know that I have troubles with infections). My joints are starting to swell and hurt and I do not want the RA to get out of control and damage anything else in my body. Last week I finally got the green light to get back on Enbrel but hadn’t gotten my first shot yet (insurance hold ups) which is fortunate since I’ve now got another infection. With the necessary antibiotics I also have to keep medicine for yeast infections on hand. I’ve been on so many antibiotics now that it’s pretty much a given that I’ll have a yeast infection soon.

OH well. It could be a lot worse.

What I’ve found as I’ve re-launched myself back into life is that I’m frustrated by “chemo brain.” I “lose” words and forget where I’ve put things and I get rattled when too many things come at me. From what I’ve read this is normal for people who’ve been through chemo as well as people who’ve had anesthesia – and I’ve had a LOT of anesthesia these past 18 months. So I supposed it is doubly normal to have “brain freeze.” But it sure is annoying. One friend suggested that this disconnected feeling is a side effect of femara – the daily medication that I’m on to prevent the recurrence of cancer. Honestly, I haven’t even looked it up. What difference would it make? I need to prevent a recurrence. Basically I think the slow brain waves should be heeded as a sign to simplify and slow down. My mind and my body still aren’t 100%.

One final note before I sign off. A special thanks to Kelley O’Brien of High Point Regional’s Public Relations & Marketing staff. Kelley has been my silent partner since the inception of “Chemo Field Trips” and she’s leaving for a new job. She’s done a wonderful job working with HPRHS and especially coaching me through this blog. I will miss her. Godspeed Kelley!

I know it’s time to write a new blog entry when I run into someone and she says “you haven’t posted a blog in 3 weeks.” And I thought you weren’t paying attention. Sorry about that. I won’t shirk my duties any more. I’ll get back on the weekly schedule.

The deal is I’ve gone back to work. It’s a new job and while I love it, I’m not juggling everything as smoothly as I’d like. I’ll tell you all about the new job in a future blog but for now let’s catch up on the rest of life.

Since I last wrote you I’ve completely healed from the minor infection in my left implant incision. Drew had a local golf tournament a couple of weeks ago and we housed him and two of his friends for a week. We had a blast but I spent a lot of time cooking for the multitudes. My husband said it was sort of like the loaves and fishes. In fact, tonight I’ve pulled out a batch of beef tips and mushrooms leftover from that week. Might as well take it easy when I can.

That same week my sister Linda and I hosted a table of 10 at High Point Regional Health System’s annual Pink Ribbon Luncheon. It was so inspiring and this was the first time we hosted a table. We did it in Mom’s memory and really enjoyed the experience.

Last week was a big week for us as well. A dear friend of the family got married and we had a wonderful time at the wedding and the rehearsal dinner. It felt great to dress up, dance and enjoy myself and feel normal!

I know it’s time to write a new blog entry when I run into someone and she says “you haven’t posted a blog in 3 weeks.” And I thought you weren’t paying attention.

Sorry about that. I won’t shirk my duties any more. I’ll get back on the weekly schedule.

The deal is I’ve gone back to work. It’s a new job and while I love it, I’m not juggling everything as smoothly as I’d like. I’ll tell you all about the new job in a future blog but for now let’s catch up on the rest of life.

Since I last wrote you I’ve completely healed from the minor infection in my left implant incision.

Drew had a local golf tournament a couple of weeks ago and we housed him and two of his friends for a week. We had a blast but I spent a lot of time cooking for the multitudes. My husband said it was sort of like the loaves and fishes. In fact, tonight I’ve pulled out a batch of beef tips and mushrooms leftover from that week. Might as well take it easy when I can.

That same week my sister Linda and I hosted a table of 10 at High Point Regional Health System’s annual Pink Ribbon Luncheon. It was so inspiring and this was the first time we hosted a table. We did it in Mom’s memory and really enjoyed the experience. 

Last week was a big week for us as well. A dear friend of the family got married and we had a wonderful time at the wedding and the rehearsal dinner. It felt great to dress up, dance and enjoy myself and feel normal!

May 24, 2011

Got interrupted last night so I’m finishing the blog today. To finish chronicling the past few weeks, we had hosted some golfers for a local mini tournament. In the middle of that my sister and I hosted a table for the Pink Ribbon Lunch. Then the son of a dear friend got married. Then it was our son’s birthday (he was home so that was nice albeit busy). Then our son’s girlfriend graduated from college so we went to her graduation.  And today’s our anniversary (31 years). Whew! May is always busy at our house but this year felt even more so. And we have a wedding to attend this weekend too.

Since I started this blog last night, one main thing has changed: As I got ready to shower this morning I noticed that the left breast implant incision was once again red and infected looking (yes, the same one I just told you had totally healed from the last infection). Wrong. I saw Dr. Willard this morning and he had to open the incision and clean out the infection. We think it’s probably my weird body having trouble with a stitch. This has happened to my dad a number of times and I typically am slow dissolving stitches. To be safe, Dr. Willard cultured the goo, cleaned out the infection and I’m seeing an infectious disease specialist tomorrow. Hopefully this will be a minor bump in the road.

What I am really ready to do is start back on medication for rheumatoid arthritis. I’ve been off the medicine Enbrel for over a year (had to stop before chemotherapy because this med compromises your autoimmune system and you well know that I have troubles with infections). My joints are starting to swell and hurt and I do not want the RA to get out of control and damage anything else in my body. Last week I finally got the green light to get back on Enbrel but hadn’t gotten my first shot yet (insurance hold ups) which is fortunate since I’ve now got another infection. With the necessary antibiotics I also have to keep medicine for yeast infections on hand. I’ve been on so many antibiotics now that it’s pretty much a given that I’ll have a yeast infection soon.

OH well. It could be a lot worse.

What I’ve found as I’ve re-launched myself back into life is that I’m frustrated by “chemo brain.” I “lose” words and forget where I’ve put things and I get rattled when too many things come at me. From what I’ve read this is normal for people who’ve been through chemo as well as people who’ve had anesthesia – and I’ve had a LOT of anesthesia these past 18 months. So I supposed it is doubly normal to have “brain freeze.” But it sure is annoying. One friend suggested that this disconnected feeling is a side effect of femara – the daily medication that I’m on to prevent the recurrence of cancer. Honestly, I haven’t even looked it up. What difference would it make? I need to prevent a recurrence. Basically I think the slow brain waves should be heeded as a sign to simplify and slow down. My mind and my body still aren’t 100%.

One final note before I sign off. A special thanks to Kelley O’Brien of High Point Regional’s Public Relations & Marketing staff. Kelley has been my silent partner since the inception of “Chemo Field Trips” and she’s leaving for a new job. She’s done a wonderful job working with HPRHS and especially coaching me through this blog. I will miss her. Godspeed Kelley!

May 2, 2011
I’m so sorry I’ve been Missing In Action – that’s exactly what’s happened. I’ve been busy and keep forgetting to write.

Work has been very good for me – I’m excited about new projects and new challenges but I admit that I haven’t rediscovered that balance between work and non work. That’s always been a challenge to me and I’ve promised myself that I’d maintain a better balance. The house is clean, the pantry and frig are stocked, dinner menus planned and I’m meeting work deadlines but certain things like this blog and returning emails and phone calls are lagging.

My one big bit of news these past couple of weeks is a recurrent theme: Infection. Just two days before the 6 week anniversary of my final reconstruction surgery I spotted a red blip in the left incision line. I’d known that one stitch had not dissolved (it was sticking above the skin) but that spot was a good inch away from this fiery bubble. Initially I thought (hoped) that the blemish was caused by the bra rubbing but after taking off the bra and wearing a comfortable cotton top, the bubble grew and looked like it was filled with infection. So on Easter Eve, I called Dr. Willard who put me back on an antibiotic. I then saw him in the office on the Monday after Easter and he opened the spot expecting to find infection and fluid. No such luck. He removed the un-dissolved stitch at the end of the incision (this isn’t the first time I’ve had to have the un-dissolved remnants of a stitch removed). Then he dug around in the inflamed spot expecting to find another stitch that was acting up.

No stitch.  Nothing.

I stayed on antibiotics for a week and the spot is healed over again. Who knows what went wrong but my penchant for developing infections is alive and well. Fortunately this spot was only in the incision and not in the implant pocket.

The week before the infection developed I nearly resumed taking Enbrel, a medication for rheumatoid arthritis. Enbrel is a miraculous medicine in that it calms down the inflammation of RA but it also reduces your ability to right infection. Thank goodness I didn’t take the Enbrel! I need it now – the RA is acting up and the joints in my hands – esp. my right hand – are swollen and hurt. However, we will wait for a few more weeks.

Now for the fun stuff.  If you wear prosthetic breasts, you owe it to yourself to check out the camisoles from Amoena. They are so comfortable! And they look great with either the lightweight foam prosthesis or the heavier more life-like ones. Since I’m babying the left side incision area, I’m using the lightweight prosthetics. Plus, I’ve found that the heavier ones sometimes make my left should ache – my left shoulder and neck have always been a bit cranky. Also, this achiness could be part of the RA’s inflammation in several joints so I suspect that will ease. Check them out at this link:

http://recoveryelements.com/amoenavalettacamisolebratop2830.aspx

With that in mind I also bought a purse last week that is more comfortable to carry – it slings across the chest and doesn’t pull so much on my left shoulder. That helps with the irritation of my left shoulder as well.

One of the many good aspects of this latest infection is that I didn’t let it go long enough to feel bad. In fact I felt great.

Am continuing to do well with Weight Watchers and actually went dress shopping (we have several weddings coming up) and I found several that fit really well! How about that! No one would ever have a clue that my chest is a mixture of scars, implants and padding!

More soon, I promise!

Very tardy blog. 

My internet service has been off line for nearly a week so that’s why I’m so late this week.

It’s now been one month since my final breast implant surgery and I continue to do very well. I’m starting to lift more normal items like groceries and laundry and I even did got a bit more aggressive and lifted some storage containers this past weekend when I put away the winter clothes and brought out the spring ones.

My chest is a bit sore and I’m not sure if it’s from the lifting or if it’s because I haven’t adjusted to wearing a bra (after nine months of not wearing one) and the new partial prosthetics. I’m trying to figure out if there’s a pattern (do I get sore in the afternoon and evening? Or is this from something I ate or drank?). Having had a heart problem 14 years ago I don’t ignore chest pain. I honestly do think this is just muscle soreness. But if it continues or gets worse, I’ll call the cardiologist.

With that said, I have not resumed exercising and I need to. I did reach the 10-pound weight loss milestone last week at Weight Watchers so that feels really good. I’m nearly back to my pre-cancer weight (I’d been successfully dieting when cancer showed up) so it does seem like I’m getting back on track.

Putting out the spring clothes was actually more fun than a chore this year. Because I was between a second mastectomy and reconstruction surgeries last summer, I wasn’t able to wear a lot of my clothes so I spent time on Saturday trying on everything. I’ve got a bag of clothes to give away. While most clothes fit, some are too low-cut under the arms; some are too tight under the arms (this is a sensitive area) and some are just ill fitting in the neckline and bust line. Honestly, these tops probably didn’t fit great before I had breast cancer so it was definitely time to get them off the shelf.

The warmer weather feels great but here’s a warning if you wear breast prosthetics – they can get warm. The nice bra and prosthetic fitters at “A Special Place” in Greensboro fitted me with the regular silicon-like prosthetics and they also sold me a lighter weight versions that are a lot like shoulder pads. While it doesn’t offer you the weight of breasts, it is much cooler and I suspect I’ll wear those in warmer weather. When I’m doing house cleaning and yard work, I don’t bother with either. Honestly, who cares? And if they do, then too bad for them.

There’s not any more news this week. I feel good, am working a lot on a cancer-related project that I’ll tell you all about soon and am doing pretty normal stuff at home.  I’m still re-learning how to balance work and home and leisure and hope that this whole experience with cancer has taught me some strong lessons about setting priorities. It’s so easy to fall back into old habits and what I want is a clean start on life.

More next week – I promise!

First of all, it’s not April Fool’s Day. It’s actually April 4, 2011 and I owed you a blog on April 1. Oops again. Actually it wasn’t totally my fault. My desktop computer is in death throes and it decided to not respond most of Friday. The new computer should arrive this week. 

In retrospect, last week was significant. But I didn’t realize it until after the fact. Thursday, March 31 marked the year anniversary of my last chemotherapy session and I was busy and felt so good that it didn’t dawn on me that I’d reached that anniversary until Saturday, April 2. While I don’t recommend being oblivious to these milestones, I think it’s pretty cool that the day was so normal and so full that I wasn’t aware of its significance for two days. Who would have thought? 

I am doing very well. Healing from the March 14 surgery seems pretty complete – at least the incisions look perfect. I still tire a little more easily than I’d like but anesthesia will make you tired. Plus, I’m rebuilding my stamina. 

Last year Dr. Chinnasami told me that a year after chemotherapy I’d be about 90% back to normal. That last 10% will take another year to reclaim. 

Am I at 90%? Mentally and emotionally I think I am. My brain works pretty darned well these days though I do still have some trouble grabbing the right word. Physically I’m infinitely better than I was a year ago but I’m not sure I’m 90% back and that’s because of all of the complications I had from multiple surgeries. What I do know is that I’m well on my way to being back and being better than before. 

My hair is growing so fast that I can barely wait 5 weeks between haircuts. My nails are growing equally fast so I have to file them often. And now they are strong – not the brittle post-chemo nails that split and break. I worked in the yard this weekend trimming shrubs and pulling ivy from tree trunks and I could work pretty hard for 2 hours before I needed to come inside, get something to drink and rest a bit before getting back to work. 

Here’s an example of what my Sunday was like. Read it and know that this can be you in a year. 

8 a.m.: Woke up (after sleeping really well) and made waffles for breakfast.

9 a.m.: Paid bills online

10 a.m: Showered and got ready for church

11 a.m.: Church

1 – 3:30 p.m.: Trimmed shrubs and pulled ivy in the back yard. And I bagged the clippings and took them to our compost pile in the far back yard. The bags weren’t too heavy but they do represent an increase in the weights I’m lifting.

4 p.m.- 6:15 p.m.: After some tea and a snack I did all of my ironing. All of it. I intended to iron maybe 15 pieces of clothes (I hadn’t ironed since the March 14 surgery) but once I got started I felt like doing all of it.

6:30 p.m.: Showered and got ready for dinner out with friends.

7:15 – 9 p.m. Dinner out with Tom and Elizabeth. We laughed so much that the waitress wanted to pull up a chair and join us.

10:30 p.m.: Reading and sleep. Another good night’s sleep. 

OK, I left out a few details but you get the picture. It was a very good, normal day. I had time with my husband, my church, my friends and spring. And I caught up on a few household chores too. That schedule would have been so daunting a year ago that I probably would have just sat down and cried. Literally. But that’s how I am today. 

90%? Close – and it’s a good 90%.  Frankly, I feel like my life is beginning all over again. 

Now I need to go. There’s laundry to be done, writing to do (I’m working more and more these days) and, frankly, I am getting a pedicure this afternoon. Like I said, these nails are growing just about as fast as the wild onions in my yard. 

Hang in there – where ever you are on your journey. And make sure you find the joy in this moment.

Twelve days after my final reconstruction surgery I am doing really well. I had a check up with Dr. Willard on Tuesday and my incisions are healing well – no sign of infection. He doesn’t need me to come back to see him for over three months. That’s shocking. In the last 15 months I have rarely spent over three months without seeing any of my doctors. 

Dr. Willard also told me to go bra shopping – this time for real bras, not just the sports bras. Becky Ayars, Dr. Willard’s scrub tech who is also a breast cancer survivor and has had breast reconstruction herself, had gently warned me that I wouldn’t be the same as before. And as I told you last week, I’m not the same. In fact, the reconstructed breasts don’t have nearly the volume as real ones. 

However, I naively went happily in search of heavily padded bras. Several friends had recommended I go to Soma which specializes in bra fittings for regular women so there I headed. The clerk was really nice but here’s the first word of warning: If you’ve had mastectomies and breast reconstruction, chances are really good that you will not wear a normal bra again. 

After 15 minutes in the store, I realized this approach was not going to work. The clerk gave me a package of “enhancers” – chicken-breast-like gel packs that help boost what you’ve got in a regular bra. It was a nice thought but reconstructed breasts don’t have much to “boost.” However, I bought the silicon jiggly things and tried to remain optimistic that someone would know how to help me. 

Like it or not, the clouds of doubt had settled in. 

I walked through two clothing stores and realized that I didn’t know what to do. The thought of sitting in my car and crying about this fact seemed like a pretty good option. But for reasons I only slightly understand, something told me to think. Other women have been through this so I’m not the first woman with new oddly shaped lumps on my chest. It dawned on me that it might help to talk with the people who operate a shop that sells mastectomy supplies but I couldn’t remember the name of this shop in Greensboro and by then (3 p.m. or so), Tricia’s Pink Bowtique in High Point was closed. 

So I walked into Coldwater Creek. A sweet clerk asked me if I needed help and I just decided to unload my troubles on her even though Coldwater Creek didn’t have a thing that I actually needed on Tuesday. The clerk (Lisa) offered to help me search for the mastectomy shop’s name in the phone book. I had a serious block about how to find this place (I’m usually really resourceful but I was once again in a “stun” mode). 

Lisa suggested that we look in the yellow pages under “wigs” and there it was. “A Special Place” on State Street. I called but no one answered the phone; they were open but busy. I didn’t want to wait so I plugged the address into the GPS and headed from Friendly to State Street. 

Fortunately for me a clerk with special training in fitting bras for women who have had breast surgery (not just mastectomies) was available. Justine spent about 90 minutes with me and was remarkable. I walked into that shop with little hope that I’d find a bra that would fit and walked out with a new shape – a really good shape. 

What I needed were partial prosthetics – silicon pads (for lack of a better word) that fill the gap between the reconstructed breasts and the cups of the bra. For a few minutes I sat in the dressing room wondering why I’d just gone through months of reconstruction surgeries to still need prosthetics but now I know. 

With the partial prosthetics – and the bras that are made to wear with them – I look good. Now that I have breast implants, I don’t have big caverns where my breasts used to be. In fact, when you pair the new breast implants with the silicon pads (and the right bras), I look really natural, even with a blouse that buttons up the front and a v-neck top. In fact, I actually look like I have a bit of cleavage. 

Yes, I know – too much information – but if you are going through breast cancer, mastectomies and reconstruction you need to know. 

With the help of my insurance coverage (you need a prescription from your doctor for the prosthetics), I bought one pair of silicon partial breast prosthetics and one pair of a lighter weight foam inserts to wear in hot weather and two bras that fit really great. My chest is actually much larger in diameter than before I had cancer so I had to go up a couple of bra sizes. I opted for a AA cup – the smallest available cup in that size. I bought two bras. Oh yes, bras specially made for women who’ve had breast surgery have deeper side panels and those are essential to holding in the tissue that loses its tone after mastectomies. 

My insurance will cover a good portion of all of these things and will even cover two camisoles a year. I want to buy those but was pretty exhausted emotionally after this experience so I’ll go back later and get those. (They are great – they have built in pockets for the prosthetics so they’ll be great for summer wear). “A Special Place” even has lingerie that will hold the prosthetics. Although the one topic I don’t plan to cover in this blog is intimacy, I am very relieved to know that I can find something pretty and feminine to wear for that part of my life too. 

Justine also told me that I can get prosthetics that hold up well for swimming and I’d eventually like to buy those as well. 

So 12 days after my final reconstruction surgery I have a pretty decent set of “curves.” Yes, I had hoped that I wouldn’t need any enhancement but more than that I wanted to return to wearing normal clothes and looking feminine. And now I can. 

Yesterday I went back to Dr. Willard’s office to show them my new treasures. What a sweet group of women (Dr. Willard’s sweet too, but the women were the ones who were really interested in my shopping spree). Becky and the others there came into the exam room so I could show them the results of my bra shopping trip. They have seen me through every ugly stage of reconstruction – no secrets here. And they were delighted at the way Justine helped finish the job they so aptly had started – reconstructing my chest. 

Yes, my new shape is largely “smoke and mirrors.” But I’m happy. I want women to know that breast implants for reconstructed women look one way outside of the chest (sitting on a table) and very different once they are put in your chest. You’d be amazed at how much of the implant fills the cavity in your chest before they overflow into what we think of as breast-like mounds on your chest. 

Dr. Willard said the plastic surgery industry continues to try different methods of giving breasts back to women who have lost them but the fact is very few women will have a natural looking shape. I sort of have a plateau – a mound that flattens out in the space where the mastectomy incisions cross my chest. But that’s before these “miracle” prosthetics and bras work their magic. 

I will continue to work on losing weight. As the rest of my body slims, the breasts will be even better by comparison (plus the new “girls” won’t ever sag or shrink). I will shortly begin exercising and toning. And the post-surgical puffiness will continue to dissipate. 

And in the meantime, I can’t wait to try my old clothes on the new me. 

What could have been a very frustrating and disappointing day turned into a new beginning for me. Thank you to Lisa at Coldwater Creek for taking the time to help me find the name of “A Special Place” and for Justine at “A Special Place” for giving me renewed hope. And thanks to my friend Susan Weaver who kept calling me (and missing me) all day to tell me that she felt called to pray for me all day. 

Epilogue: I returned that set of “jiggly” things to Soma and told the clerk there about “A Special Place.” She’s happy to know where to send other women like me. Then I went back to Coldwater Creek and showed sweet Lisa what a good job she had done. She cried when she hugged me. Susan Weaver and I finally stopped playing phone tag and I got to tell her that her prayer radar had, indeed, picked up on a need that I didn’t even know I had. And yes, her prayers (and mine) had been answered. 

Angels are indeed everywhere.

Nearly 15 and a half months since I was diagnosed with breast cancer – months that have dominated by weeks of chemotherapy and numerous (8) surgeries – I am finished! At least with the major events. I’m a little hesitant to say I’m done, but I think I am done! 

Monday morning I had my tissue expanders removed and exchanged for the breast implants. I arrived at Dr. Willard’s office at 9 and was at home eating a sub sandwich by 12:45 p.m. Granted, I am one of those lucky people who doesn’t get sick from anesthesia but even by my standards, this was easy. 

Pain-wise, this surgery couldn’t have been simpler. I took pain medicine just because they told me to on Monday afternoon and napped for a few hours. Then I took another pain pill when I went to bed just in case the pain surfaced and kept me awake. By Tuesday morning I realized I didn’t need any more of the mild narcotic. Finally on Tuesday afternoon I took a lower-level pain pill (just a little stronger than Tylenol) and that was it. I haven’t taken anything else because the discomfort has been minimal. I feel a little bruised but that’s all. 

Now for the question everyone wants to ask: What are the new “breasts” like. 

Well, to be honest, my chest doesn’t look that much different than it did with the tissue expanders. The implants are infinitely softer and more comfortable, but I do not look like my old self – and I didn’t expect to. 

Right now I’d say I have a more “athletic” build. I’m certainly not buxom but the process is not over. I have some swelling from surgery (most of which has been pulled by gravity into my abdomen) so that doesn’t give me a lot of contrast between chest and waist. 

As I’ve told you, I’ve been working on losing weight and I’m very glad that I have. Unlike regular breasts, these implants will not shrink or sag as I lose weight so the challenge to trim my waist (thereby enhancing my chest) is on. 

Thursday was a monumental day. My friend Anne took me to WalMart to buy bras. You see, breast implants are like putty – they conform to the shape they’re in. Because my chest has horizontal scars from the mastectomies, those areas flatten out and that’s exactly where normal breasts reach their maximum span. I know it’s hard to envision, but it’s safe to say that I have amorphous mounds – at least for right now. 

Honestly, the “mounds” are infinitely better than the “divots” that were in each side of my chest after the mastectomies. 

Back to bra shopping. Dr. Willard’s office told me to start wearing sports bras as soon as I could to harness this new tissue into a breast-like shape. So Anne and I headed to the place that I knew had front-opening sports bras (you do NOT want to have to wrestle a sports bra over your head after surgery!). I learned when I had the first biopsy that WalMart stocked front-clasping sports bras by Champion. It’s really odd to buy bras after not wearing them for 9 months. Frankly, I thought the process would be depressing but it wasn’t. I picked out the size (inch-wise) that I wore before and the next size up to try on (in case I was swollen – I didn’t want anything binding). The smaller size worked. And because I’m wearing a sports bra, I didn’t have to worry about the cup size. 

The bras don’t feel bad and I thought they would be binding and uncomfortable. I guess I’ve become accustomed to the binding feeling of the tissue expanders because this isn’t uncomfortable. I bought three sports bras so I can wash them often (you know how paranoid I am about infection). 

I go back to Dr. Willard’s office on Tuesday and will find out about the next step of recovery. Apparently these implants need to be massaged and shaped – at least that’s what I’ve heard. Frankly, this whole cancer process has taught me to take each part of this journey one step at a time so I haven’t thought beyond this week’s goal – heal and don’t get infected! 

I can tell you this much, when I do return to wearing real bras, they will need to be pretty heavily padded. A friend who has mentored me through this journey candidly told me that she’s had to experiment with padding to fill out her bras and that the end result is never going to be like the old breast. Her breast reconstruction was done by a different method than mine so I can’t completely predict how I will end up looking but I suspect I’ll never be the same as I was before. If I can look anywhere as good as this friend does, I’ll be thrilled.  I knew I wouldn’t come out of this process with perky, pristine breasts. 

Today I’m wearing a cotton knit, V-neck top and it looks fine. If you didn’t know what I’d been through you probably wouldn’t notice me at all. This past year I’ve learned a lot about wearing clothes that flatter my figure and that knowledge will continue to help me dress in ways that I feel good about. 

A number of our friends have jokingly ask how big the new breasts will be and I kind of think they expect me to be bursting out of the seams. Breast augmentation (enlargement) may be like that but breast reconstruction is not. I simply had a limited amount of tissue that could be used. Mastectomies remove your breast. For me, hemorrhaging and infections caused scar tissue to develop. The tissue expanders made pockets for breast implants and I now have some shape where there was once a cavity. That’s the simple – and sometimes cruel – truth of mastectomies and breast reconstruction. 

It sounds like I’m accepting that I won’t have much of a chest – and that’s probably because it’s the easiest thing for me to do. Once I can exercise, trim down my waist and harness these implants into shape, I may have better results but for now I’m ok. I’m relieved to be done with surgery and I’m eager to get my energy back and to not have to face another surgery. 

For the next couple of weeks I’ll avoid activity that stresses my chest muscles. I’ll also be careful to avoid sweating. I want to heal without complications. I feel like I’ve been reborn and I’m eager to move on to the next stage of my life. Plus, I’ve postponed doing my tax preparations until now so I have a deadline to meet. And though it may be emotionally stressful, tax preparation is not physically challenging. 

This blog is sort of weird – it’s odd to describe breast implants and bras and feelings about breasts to the world but I want you to know what this is like. This is a journey into the unknown. No one can tell you exactly how these stories end – and my story hasn’t ended. 

I’ll be back next week and for the weeks to come to tell you – as candidly as I can – how reconstruction turns out. Just remember that every single one of us has a different story.

I did it again. I got so caught up in the day Friday that I forgot to write the blog. John had the day off and we started out early with all sorts of long-spring weekend plans – good plans. And the next thing I knew it was evening and I hadn’t written to you. 

So that’s a good thing. More normal even though it means I left you hanging – again. I feel good and the only post- chemo, post-multiple surgery issues lingering (except for one final surgery) are the aches in my shoulders, lower back and wrists. They are signs that rheumatoid arthritis (RA) is at work again. I’ve had the disease for nearly 15 years. Chemotherapy actually soothed the RA when it suppressed my autoimmune system. Because I still face one final surgery, I’ve been off the RA medication for nearly a year so my body is finally nudging me to wrap up the surgeries and get back to the RA med regime. 

Soon. 

I had an epiphany last week. My scars aren’t deficits; they are assets. They are part of the resume of my life – just as much as the years I spent as a newspaper reporter or the time I spent leading the PR department at High Point Regional. The lessons I’ve learned are invaluable and I want and need to pass those on to the women out there who will be diagnosed soon with this disease. 

My final surgery will be this week. I hesitate to say the word “final.” It’s not so much that I’m superstitious. Nor is it a feeling of fear. I guess I’m just prudent. So many people I know have experienced recurrences that I feel smug saying “I’m done.” 

I’ll write you more after the surgery to tell you how it went and to let you know what the “girls” are like. I know going into this that the final breast implants will not be exactly like real breasts. A lot of folks gently ask about the size. Before I go into this surgery I can assure you that they won’t be big – there’s just not enough tissue to do the “Dolly Parton” thing even if I wanted to (and I don’t). The tissue expanders have stretched my chest muscles and skin to the maximum – an especially tough job considering the scar tissue on each side (left side had hemorrhaging-related scarring and right side had infection-related scarring). But I’ll let you know how things turn out.

I’m proud to announce the arrival of my daffodils! New life is blooming all around me and my life is blooming too. 

I met with my plastic surgeon Dr. Willard this morning and it is time to have my final breast reconstruction surgery! I’ve healed beautifully (finally). And get this – I can have the breast implant surgery done in the operating room at Dr. Willard’s office. The surgery will be fairly simple compared to the past surgeries. I will NOT have drains this time! I will go to his office at 9 the morning of surgery and will most likely be home by mid day. 

The surgery will be in a couple of weeks (I don’t like to put the specific dates in the blog) so you’ll get another blog entry from me before the surgery. 

A few updates. My hot flashes (from femara – the pill I take daily to help prevent the cancer’s return) have really leveled out. No more episodes of spontaneous combustion – just warm waves. Dr. Chinnasami assured me they would level out and they finally have. Warm weather will be the test of the hot flashes I guess but I’ll deal with that when the weather improves. 

Last week I told you that I’d mailed my late brother Todd’s silver trumpet to my brother Chan and his son Owen. They received it on Monday and on Tuesday night Chan called me to report on Owen and the instrument. Owen had found beginner trumpet instructions on the internet (he already plays the trombone and the piano) and was belting out notes. I am still giggling at that phone conversation. Chan was trying to tell me something while notes from Owen and the trumpet bellowed through. I am so happy that Todd’s trumpet is once again being played – and I feel certain Todd is happy about that too. 

This week I took another item out of storage – a punch bowl that belonged to my mother-in-law – and will give it to my sister-in-law Donna this weekend. Like I said before – it’s time to check off those long-overdue items on life’s to-do list. 

Otherwise I feel great. Yes, there’s still tightness in my shoulders but the light is really shining at the end of the tunnel.

Next Page »

Follow

Get every new post delivered to your Inbox.